Kure SMA Day!

Event Details

Date(s) & Time(s)::

September 14, 2013 at 8:00 AM until 8:00 PM

Location: Greater Binghamton Sports Complex on Airport Rd.

Phone: 607-624--0892

Email: KureforKulas@gmail.com

Link: https://www.facebook.com/events/141218822731569/

Event Description

May 20, 2013 Updated May 20, 2013 at 8:32 AM EST

A HUGE SALE of New & Used Items, Exciting Vendors including local handmade items, a Monavie Distributor with an antioxidant scanner, an Ongoing Auction, a DANCE PARTY at noon with the BMets Mascot for the Kids, a Bounce House, DJ All Day!, Sports Activities, Baked Goods, Hot Dogs & Hamburgers and more! Come Enjoy a fun packed day, all in support of Kalen & Kyan and funding for a Kure for Kulas! $5 a person at the door!
Local Family, Parents Jared & Sierra Kulas, have two children, Kalen & Kyan, ages 2 and 1, who are both affected by a terminal illness, SMA, with no current treatment of cure.
100% of the proceeds are going to FSMA (Families of SMA) to aid in the fight against Spinal Muscular Atrophy, in an effort to find a treatment of cure for this horrible disease.

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