Little boy with terminal illness made king, given castle

By Perry Russom
By Scott Sasina

August 20, 2014 Updated Aug 20, 2014 at 7:34 PM EDT

Town of Fenton, NY (WBNG Binghamton) A little boy in Port Crane with a terminal disease has been named an honorary king.

Kalen Kulas, 4, accepted his crown and scepter Tuesday outside of his home, but what does every king need in order to rule? A castle.

Kalen made a wish for a castle-like tree house through the Make-A-Wish Foundation and about six weeks ago, construction on his dream started.

On Tuesday, his castle was unveiled in front of family and friends in his backyard.

"As we got into it, it grew, and we got more people involved," said Don Harris, director at Delta-Engineers, Architects, & Land Surveyors. The group joined volunteers in building the fort. "Many people from Delta came forward and said, 'Hey let's build this thing,'"

Kalen has spinal muscular atrophy. The Muscular Distrophy Association reports SMA affects a portion of the nervous system that controls muscle movement.

Wish granters from the Make-A-Wish said it can be difficult when choosing a child, but because of the rural location for Kalen and his charming personality, they say this time, it wasn't very difficult at all.

"Originally when I met the family, I was just here for the initial visit to find out what Kalen wanted for his wish," said Beth-Ann Kicsak, Wish Granter, Make-A-Wish. "Then I meet him, fell in love with him and his family and decided with my partner Heather to move forward with creating his tree house."

And after countless hours of drilling, sawing, lifting and hammering, all of the hard work that everyone has put into it has finally paid off and now Kalen is the king of his very own castle.

"It's going to be weeks worth of exploring to figure out everything that's in there and all of the things that they can do, so we cannot be more excited and more thankful," said Sierra Kulas, Kalen's mother.

King Kalen lived in his castle happily ever after.