Around the Tiers: "Kare for Kulas Day"

By Conor Mooney

September 11, 2013 Updated Sep 11, 2013 at 6:27 PM EDT

(WBNG Binghamton) A big day for a great cause is happening Saturday.
Sierra, Jared, Kyan and kalen Kulas came by to tell us more.

Below is a statement from the family:

Time to *Kreate Miracles* with our 1ST ANNUAL *Kure SMA Day!* Greater Sports Complex on Airport Rd. September 14th, 8 am-8 pm.
A New & Used Item Sale, Drawings, A Bounce House, A Dance Party with the BMets Mascot from 12-1, Hot Dogs & Hamburgers, A Music DJ, A Live Band, Bake Sale, Prizes, A Hoola Hoop Contest, Face Painting, Games, a 50/50 Drawing, Many Local Vendors and much, much more!
Local Brothers from Port Crane, NY, Kalen & Kyan Kulas are affected by a Terminal, Genetic Illness, Spinal Muscular Atrophy or SMA. It is the number one genetic Killer of Children under the age of 2. SMA is a neuromuscular disease that affects the nerves and muscles of the body to the point that they can no longer function on their own, resulting in deterioration of life functions, wasting, and the inability to swallow and breathe independently.

It is urgently imperative that we raise funds for research into a viable treatment and cure for the awful disease. At the ages of 3 and 1, Kalen and Kyans' lives will be cut short without either a symptom alleviating treatment or a cure for the disease entirely.

While SMA is extremely serious and very severe, it is the closest in over 600 diseases to be CLOSEST to finding a CURE. Please Help with this Final Push.
A $50 Donation earns you a Kure for Kulas Bracelet, A $100 Donation earns you a T shirt! We are officially asking for Donations of New Items, Gift Baskets, Gift Certificates, as well as Monetary Donations, which can be made payable to "Families of SMA." 100% of the proceeds from KURE SMA DAY will be going to Families of SMA, in support of research advancing towards a viable treatment and cure for this progressive, life threatening disease. We can't do it without you...We NEED your HELP!

www.FSMA.org/KureforKulas ~*SHARE this event, TELL your Friends, INVITE your Family, TALK to your Boss, SIGN up to Volunteer and Together, Let's ~*KREATE MIRACLES*~ ♥ A HUGE THANK YOU from Kure for Kulas, Inc. & FSMA ♥

www.KureforKulas.com *Like* us on Facebook at Kure for Kulas
Families of SMA (FSMA) Partners with Kure for Kulas, Inc. in an effort to STOP SMA! JOIN in our Effort!

Please Contact for ANY Questions:
Sierra Kulas (607) 624-0892 Please send any gift cards, donations or baskets to: 1494 State Route 7 Port Crane NY 13833
or call to arrange a pick up. Contact us: KureforKulas@gmail.com
Thank You So Much!