Imagine feeling hungry, even starved, no matter how much you eat.

It's a rare disease called Prader-Willi Syndrome.

And a little boy in Greater Binghamton is struggling with PWS.

Tommy Maczko's father calls his two year old son a ray of light.

Soaking up life like any toddler should.

But since birth, Tommy's parents have had to watch closely as he eats.

"It terrifies me, to have not being able to know that my child is satisfied. It's a horrible thought," says Cathryn Maczko.

Tommy has Prader Willi Syndrome.

Almost every person with PWS will develop an insatiable hunger.

"The worst part when you think of it, he can have three Thanksgiving meals, and he will still be starving," says John Maczko.

A hunger that usually starts between two and five years old.

Prader-Willi Syndrome also slows Tommy's development

He has half the muscle mass of most children.

"And therefore about 50 percent of the calorie requirement. And you add that with insatiable hunger, and it's a pretty ugly picture," says Cathryn.

Plus a slow metabolism that comes with PWS, and the outcome could be extreme obesity.

While Tommy bounces around like a typical two year-old the road ahead could be difficult.

Some PWS patients spend time in special treatment centers, but the Maczko's say they'll fight for a cure.

"I believe that that god has a cure for the hunger in Prader-Willi Syndrome out there, and it's our job to find it," says Cathryn.

Mom, dad, brother and sister all find inspiration in little Tommy.

"I just get down and I think of Tommy and what he's battling, and it picks me right back up," says Jack Maczko.

Taking care of him is a team effort.

"I usually make breakfast for everybody before I go to school. Because he wakes up around 7 o'clock, and so I just make breakfast for him," says Julia Maczko.

"Great big brothers, great big sisters and moms and dad that push an awful lot of love, and action is going to be where it is at," says John.

The Maczko's will rely on love to fight the disease with an unknown cause, and without a cure.

75 percent of people with Prader-Willi Syndrome have not been diagnosed.

But, its estimated it affects about 1 in every 12 to 15 thousand people.

You can find out information about the disease at www.PWSAUSA.org.