Port Crane, NY (WBNG-Binghamton) The Make-A-Wish foundation is helping the dream of a terminally-ill boy come true. Kalen Kulas is 4-years-old and all he wants is a tree house.
Kalen suffers from Spinal Muscular Atrophy or SMA. This often fatal disease attacks and destroys the nerves controlling voluntary muscle movement for walking, crawling and even swallowing.
Kalen's parents said he is affected with type II SMA, which means he is able to crawl and move around fairly well but as he grows, the disease will become more and more severe.
"We can't sit back and kind of feel sorry for ourselves and feel sorry for our kids. We just have to set up and try to do what is best for them and try to make their lives as best as we can so that's all we can really do and take it one day at a time," said Jared and Sierra Kulas, Kalen's Parents.
But after the storm, comes the sun, and through the Make-A-Wish foundation and the volunteers at Delta Engineers, Kalen will be able to have his biggest wish come true- his own tree house.
Kalen said he is very excited for his gift.
"I go crazy! And smile a lot too. Because I like when I get new stuff, I get excited!" said Kalen.
The Kulas said the process for having this done for Kalen has been amazing thus far. Mrs. Kulas said that she went to the Make-A-Wish website, filled out a simple one page application, and less than a month later she had people telling them that Kalen's wish would come true.
"I am always above and beyond amazed when anybody will take time out of their own schedule. They work nine to five, Monday through Friday, they just have Saturday and Sunday off and here they are working on our house for our kids," said Sierra.
The Kulas said the best part through all of this is knowing that this is an experience that their children will remember for the rest of their lives.