Johnson City supports young girl with rare condition

By Chelsea Bishop

March 4, 2013 Updated Mar 4, 2013 at 11:12 AM EDT

Binghamton, NY (WBNG BInghamton) A young girl receives more love and support than she could ever imagine.

Friends and family came together Sunday dressed in purple -- with a purpose.

"The Chiari Foundation, this is the color of their foundation," said event organizer Patrick Garey.

Kendall Brzozowy, 11, has a genetic disease called Chiari Malformation. It's a rare condition that causes structural defects in the cerebellum, which controls balance.

"She suffered from severe migraines, leg pain, her arms and legs would fall asleep randomly, she never really slept," said her mother, Kori Brzozowy.

"One out of 1,000 people have it and don't even know they have it, so we're trying to bring some awareness to it," Kori Brzozowy said.

This is Kendall's second benefit. She said she's received an overwhelming amount of support from the Johnson City community.

"They're always there," Kendall said. "They've sent me lots of cards and letters."

Although Kendall had surgery in January, she said she's already going to school for two hours a day. With the support of her family and friends, it's making the transition a lot easier.

While Kendall's favorite sport, softball, may not be in the near future, she still has big goals in mind, including giving back in her own way.

"Kendall has decided that many of the proceeds she wants to donate back," Kori Brzozowy said. "She wants to donate to the Ronald McDonald house. We've stayed there for two weeks."

Sunday's benefit raised thousands of dollars. There were raffle baskets, silent auctions, 50/50 raffles, door prizes and spaghetti dinner tickets.

The event was also a celebration that Kendall hasn't experienced a headache since before her surgery.

"She's having a blast. It's nice to see her smiling," her mother said.

Kendall is expected to be fully recovered from surgery by June.

"She's turning back into the Kendall we all know very well and love," Garey said.

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